I’ve been experimenting with drinking caffeine again because it’s good for my migraines (but not too much) and it’s might be good for whatever is ailing my left thumb. Heh. I first wrote thump. Left thump. That’s funny. Anyway, It’s been a few months and the results have been mixed. I’ve been mostly migraine symptoms free, so yay! Thumb is slowly and painfully getting better. Not fast enough for my liking and I don’t know if caffeine has anything to do with it. I’ve been stretching and massaging it daily, which is probably the real reason it’s doing better.
It’s fucking my sleep really badly, though. at least, that’s what I think is the problem. I don’t think it’s caffeine in general, but either how much I’m drinking or when I’m drinking it. Or rather, not how much I’m drinking, but how strong I’m making the coffee. Either way, I’m falling asleep anywhere from 10 p.m. to 4 a.m. and getting up…well, there’s no set time any longer. On the one hand, it doesn’t matter because I rarely have to be anywhere in the morning. On the other hand, it’s really fucking with me not to have any kind of schedule.
When I was going to bed at 7-8 a.m. and getting up around 1 p.m., that was a schedule. It wasn’t a great schedule, but it was a schedule, nonetheless.
Ok. Because of said schedule, I’m tired. Done for the day.
My sleep has been shit(tier) lately so I apologize in advance if this is a rambling mess of a post. Sleep, my lifelong nemesis. So much so, I’ve written a novel with Morpheus (of Neil Gaiman fame. Not that he invented Morpheus, of course, but this particular version) as the main antagonist. Goddamn it. I still feel sorrowful when I think of that novel because there’s no way I can publish it. It’s not fanfic as the main character is, well, me. I use all the members of the Endless as I envision them, and, quite frankly, it’s really good.
Anyway, I’d been happy because in the past year or two, my sleep had stabilized. But then in the last few months, it’s gone off the rails again. Why? I don’t know. Is it because of the coffee I’m drinking again? You’d think so, but the troubles started before I took up caffeine once again. It may not be helping, but it’s not the root cause. It’s frustrating because caffeine is beneficial for some things (thumb issue if it’s RA), negative for some things (sleep) and both in others (migraines). So far, I’ve kept the caffeine because the positives have outweighed the negatives, but I may have to quit if it gets worse.
My thumb is better. It’s still sore and tender and hard to bend at times, though. I’ve decided that it’s probably better not to wear a splint most of the time because I don’t use it when I type. The main reason to wear a splint is to keep the digit from moving on its own or from being accidentally knocked into. I feel that constricting the blood flow is not a good thing to do for hours on end so I only put it on when my hand starts actually hurting rather than just being sore and tender to the touch. I can deal with it even though I’m not happy about it, obviously. What’s more worrisome is that my right hand is starting to have…issues. Not the same issues as my left thumb, but still.
Ok. I’m just not feeling it today. Here are Maru, Hana, and Miri.
I am a weirdo and I know it. Most of the time, I’m fine with it. More than being fine with it, I’m happy that I’m not part of polite society. I make it easier on myself by only being friends with fellow weirdos (though some pass better that I do) so I don’t really think about it on the daily. Sometimes when I talk to my brother because he’s definitely more mainline than I am, but he’s starting to skew more towards weird the older he gets.
A week ago or so, I was talking to my BFF. Somehow, we started talking about kids and school. Probably because she’s a teacher and has a teenager of her own. She got her first jab and will be getting her second this week. Yay! I’m so happy for her. I’m not eligible because most of my issues are not documented. And, they’re not as serious as many people’s. I mean, yes, having bronchitis for six months is no fun, but it’s not life-threatening, either. That’s sums up my myriad of health issues. None of them are terrible in and of themselves, but they could lead to something worse and the sum is worse than the individual parts.
For example. Having a cold or bronchitis for months is not a big deal in and of itself. Constantly getting them, though, is an indication that I have a really shitty autoimmune system. Nothing too serious, I don’t think. I’ve never had a doctor voice concern about it, but there could be several reasons for that. Oh! My thyroid issue is a big deal, but that’s mostly taken care of. Migraines? I consider myself fortunate that a full-blown migraine is rare for me and when it does happen, it just puts me out of commission for one day and most of the next. And, by out of commission, I mean weakened, exhausted, extra-sensitive to stimuli (I’m already sensitive to stimuli in my day-to-day life), and being fragile. The second day after the migraine, I’m about 80% back to normal. Given the descriptions I’ve heard/read about how terrible some people’s migraines are, yes, I consider myself lucky. Also, if I catch one in time, I’m just stuck with a low-level headache, slight nausea, and hurting eyes for the day.
When the pandemic started, I knew that if I got Covid-19, it would most likely hit me really hard given how badly my body does with regular colds. The last time I got the flu shot, I was out of commission for three days afterwards. Yes, I know it wasn’t the flu, but it sure felt like hell, anyway. I will be getting the vaccine for Covid-19 when I’m allowed, but I anticipate having a bad reaction to it, especially the second dose.
Where was I? Oh, right. So my BFF and I talked about how for most of her kids, the pandemic has sucked school-wise, but for a minority of them, they have thrived doing online schooling only. I said I felt similarly. Because of my PTSD, I am aces in a crisis. It’s only the imminent threat has passed that I fall apart. For the pandemic, that meant around month four or five. I went from being calm and focused to being incandescent with rage. For two or three months, I was furious. Some of it was reasonable, but some of it was just generalized anger at the world around me. Two things I regret most about last year (other than the pandemic itself, of course) were my missed trips to see my two best friends. I’m hoping to see both of them in 2022, but it’s still hard to swallow.
While my BFF and I were talking about school and neurodiversity, I mentioned that I wished there had been more known about neurodiversity when I had been a kid. I would definitely have preferred online school to in-person school for several reasons and would have love the current situation from a school point of view. If I were to go back to school, it would be online with me doing most of the heavy work by myself at home.
I’m a contrarian. I know this and to some extent, I embrace it. I swear to the heavens that it’s not out of spite or because I think I’m better than anyone else, but it’s just how my brain works. I tend to look at something from several angles and poking holes in theories. I will say that part of it is me always rooting for the underdog, which means I want to represent the minority viewpoint more often than not. It’s also because I hate things being misrepresented. It’s one reason I had to step back from politics because of the in-fighting. I expect Republicans to attack Dems, but it’s Dems viciously tearing each other apart that drives me fucking nuts. It’s always been that way, but it started getting really bad during the 2016 primaries and it has just gotten worse over time.
I am a far leftie in theory and a not-quite-as-far leftie in practice. That means I get to see the ugly on both sides. It really irks me that some Democrats online spend more time slinging arrows at each other than across the bow. What is the fucking point? I’m not talking about discussing the differences and hashing out what’s important to the party. I’m talking about demonizing the other side and declaring them the enemy. Seriously. We’re talking about degrees of how far we should go on an issue rather than being on opposite sides. It’s frustrating and irritating, and I want no part of it.
However, this post isn’t about me being a contrarian about ideas and politics and whatnot, but rather about me being contrarian when it comes to pop culture. Now, while it’s true that in the aforementioned instances, there is often a small part of pure contrarian because that’s who I am. It’s 95% not that, but maybe 5% that. In this case, though, it’s simply I don’t like what other people like. I know some people think it’s me being hip or whatever, but it truly isn’t.
A recent(ish) example is Knives Out. It was a huge success and it got raved about over and over again. So many superlatives, so little time. It was an ensemble cast with a quirky detective, which should have been right up my alley. I watched the trailer and was…not impressed. Everyone talked about how great Daniel Craig was, but I could not get past how terrible his accent was. Maybe it was purposeful? I mean, he’s a great actor so I cannot imagine he couldn’t do a spot-on accent. Also, he appears clueless, but it had to be an act, right? Like Poirot.
Come sit by me. That’s usually my attitude towards that saying, but today, I’m going to put a spin on things and list all the good things about me that I can. Why? Because normally I gloss over them or downplay them or ignore them completely. I’m not comfortable with any kind of self-praise, evev if it’s just me saying it to myself. I’m treating this as just an experiment to take the heat off myself and I’m pretty sure I’ll explain away every positive point, but so be it.
Let’s start with the physical. I have two features I like. One is my hair, which is funny because I wear it in a topknot all the time. When I wear it down, I get compliments on it. It could be simply because of the sheer length.
Side note: I’ve mentioned this before, but my hair used to reach my waist. It stayed there for several decades until a few years ago, it began to grow again. I had no idea why. Normally, I would give credit to taiji, but that wasn’t something that had changed in that time. After some reflection, I realized it was probably my change in diet. That was around the same time I cut out dairy and gluten plus some other things that were giving me issues. That made sense to me and I’m sticking with it.
It grew to nearly my knees, well, a few inches from my knees, and I noticed that the edges were getting scraggly. I cut off roughly six inches and it’s now at the top of my thighs. I’m holding out hope that it’ll grow past my knees and that’s my new hair goal. The old one used to be let it turn all white a la Storm from the X-Men before chopping it off. Now, I want it to reach my ankles.
Weapons. Let’s talk about them. Why? Because I’m obsessed with them. I mean, I’ve always loved my weapons, but in the last few months, they’ve really become deeply meaningful to me. As much as I love taiji in general, I would not have said the same for the Solo Form. I’ve really struggled with the Solo Form. I hated it from the beginning and, honestly, I didn’t know why I stuck with it especially since I had a disastrous experience the first time I tried taiji due to a terrible, manipulative, shady teacher.
With my second teacher, I fought her every step of the way. I was recalcitrant and grumpy, pushing back hard on whatever she said. I hated the Solo Form. I hated it so much that I didn’t practice it at home. In fact, I added a second class a week because I wouldn’t practice at home. Why didn’t I quit especially as it was not mandatory in any way? I’m still not entirely sure. Something inside me kept pushing me to go. I needed something to do as exercise as I hated nearly every other form of it.
In addition, I wanted to have a way to defend myself if I ever needed it. I have been in harrowing situations in the past and never want to be in one again. Or rather, I never want to feel as helpless as I have in the past. Indeed, I have already seen the fruits of my labor in other ways. Such as my minor car accident in which I saw the other car coming towards me. I thought, “I’m going to get hit,” and my body immediately relaxed. I didn’t will it to relax and I didn’t consciously think that I had to relax–it just happened.
But did I ever learn to love the Solo Form? No. I still don’t. I don’t hate it any longer, but I don’t love it. And yet, there was something in me that kept pushing to do it. I resentfully started practicing at home for five minutes a day. Just the warmups and maybe a bit of the Solo Form. Oh, I also did the weight-bearing set that is in taiji as well.
Against myself, I started incorporating more and more of taiji into my daily life. I added a third class and my home routine stretched out into ten minutes, fifteen, and now, up to forty-five minutes with the expansion being on the weapons side. I’ve had to cajole and trick myself into doing more taiji because that’s the way my brain works, but whatever it takes.
My previous post was about a family issue that is compounded by a bad habit of mine and now it’s threatening to bring about a migraine. You can read about it here. Yesterday, I had to take my Migraine Excedrin (generic) for the first time since I started my caffeine regime. My sleep has gone directly to shit and I’m stressed about it even when I’m not looking for it. The document, I mean. The problem is that there is three or four places it should be. Three or four places where I would put it, I mean. I remember my brother bringing it to me and me putting it in something and putting it on the shelf under the coffee table. Which is funny because he remembers me putting it on the coffee table, which I’m pretty sure I wouldn’t do. He added, or on the table by the couch. The one with the lamp. Also not what I would have done.
I’ve checked the three or four places several times and now, I have no idea where else to look. There are places that it’s not possible at all because I don’t go into those areas. There are places that are highly unlikely because I just simply would not put anything there–but I’m getting desperate.
The hidden part is that looking for this blasted thing is draining my energy–not that I had much to begin with. I’ve been making deals with myself like, “Check this area, then you can have your pudding.” And not the British version of pudding, but literal pudding.
By the way, sometimes, the simplest things are the best. Instant almond milk chocolate pudding plus a plant-based whipped cream with blueberries, chopped cranberries, and chocolate granola FTW.
Anyway. Gotta keep looking, but I’m running out of ideas.
My sleep has gone to shit again. This is not surprising, though it is disheartening. It happened once early in the lockdown and I managed to get it mostly under control–going to bed by 2 a.m. at the latest. In the past week or so, however, my body has just said to fuck with all that. I just had the revelation that it might be because I’m drinking caffeine every day again, although that has been longer than the sleep bullshit, I think. Back when I used to drink caffeine on the regular, it didn’t affect my sleep at all. But I gave it up for two years so maybe I’m a newb again when it comes to caffeine. Or it could just be my body being stupid. Bodies are stupid sometimes.
Bedtime has been creeping back again bit by bit. I hit the peak of 6 a.m. two nights again and decided I needed to rein it in. The problem is that I fall asleep/nap around nine or ten at night for an hour or so and then I can’t properly fall asleep for hours. Last night, I went to bet at 5:30 a.m. Sigh. Oh, and I think I have some kind of bug because I’m sleeping more than seven hours a pop. I would like to get it back on track, but a small part of mind says, “Who the fuck cares in this year of our lord, the pandemic?” It doesn’t matter, really, when I go to sleep, but it’s a point of honor now to see if I can actually sleep like a normal person. If I can move my bedtime to 1 a.m. and keep it there, I’d be satisfied.
Let’s talk about the staff/spear. I write it that way every time because it’s a staff, but I’m doing spear drills. It’s made of waxwood and it’s smooth as butter in my hands. It feels like supple plastic (in a good way) as it slides effortlessly in my hands without the fear of getting splinters. I love it like I’ve loved no other weapon save the sword and I want to learn ALL THE THINGS.
This segues into the title of my post, however. D is for disability. I don’t use the word because I don’t feel like I have the right but also because I don’t want to put that label on myself for the usual litany of reasons. Internalized ableism; feared ableism; thinking of myself as lazy rather than disabled; and more. In addition, it’s hard to think of myself as disabled because as I’ve said before, each individual thing is not huge in and of itself.
It’s also hard because I feel like a lazy bitch all the time. Part of that is depression, but part is because my body tires out so quickly. Then I think it’s because I’m fat and lazy and not in good shape, not because of my various issues.
I can’t. Sorry. I’m just not in the mood. Some days, it’s just too much effort. Here’s Apocalyptica doing O Holy Night.
One way I can tell when I’m nearly done with something is that everything gets on my last nerve. Normally, I’m good at deflecting and keeping my shit to myself. But if I’m not allowed or able to replenish my reservoir, that ability erodes until at some point it completely disappears. for example. Talking to my parents on the phone. Normally, I just ‘uh huh’ and ‘really?’ until the phone call ends and then shake off the slight depression before going about my business. By the way. My brother and I recently compared our conversations with our parents, and they’re exactly the same except I get more bitching from my mother. Way more bitching. Most of the time, my mentality is, “Just listen to them blather, nod in agreement, and get off the phone as quickly as you can.” With an added, “Tell them you’re fine, everything is fine, yes, Covid-19 sucks, yes, this current president sucks, have a good life, goodbye.”
It doesn’t help that my parents are deeply entwined in a codependent relationship that I’m afraid will leave my mother worse for the wear. I mean, hell, it already has as most of her life revolves around my father and catering to his needs. My mother was on a kick for fifteen years to get me pregnant and then switched to getting me married after that. She would say who would take care of me when I’m old and sick if I weren’t married? It took every ounce of will I had not to snap out that her being married hadn’t helped her. Indeed, recently, she fell and hit her head, and as she felt the blood (which was pink), my father insisted it wasn’t blood. He kept asking her if she had dyed her hair recently which, first of all, she hadn’t dyed her hair in a decade or so. Second, she’s never dyed her hair pink. She said this proved she couldn’t count on him and then did a little laugh. I hate that laugh, by the way. It’s a fairly new addition and she only does it when she knows that she’s saying something unreasonable. Like having to put up with your husband being worse than useless in an emergency situation.
By the way, my mother shared that my father’s latest dementia tests show that he hasn’t deteriorated in the year. She was relieved while I was baffled. If it’s not medical, then why is he getting worse and worse with his memory, his self-absorption, and everything else? This is an age-old question with him, though. Is it medical or just his innate narcissism? I try not to get sucked into the speculation, but it’s hard not to get drawn into it because my mother is incessant about talking about my father.
Anyway. When my mom calls, it goes like this. She asks the perfunctory ‘how are you?’ question then use it to springboard into whatever she wants to talk about. Usually her many physical problems, things my father has done to irritate her but she can’t admit it, Covid-19, the election, work issues, and then insist that I talk to my father. He’ll ask about Covid-19 and express amazement that it’s not going down. A bit about this president and the totally unfounded belief that Americans are logical and rational people and how could this happen? He says in complete seriousness that America is the best country in the world! Mind, he hasn’t actually lived here in nearly 30 years, but facts don’t matter. Then he pontificates how each individual person doesn’t matter (when it comes to the coronavirus) and we can’t do anything so we should just ignore it and move on.
Was reading my stories (AAM being the main) and there was a question about what to do when your boss was wearing his mask wrong (under the nose). I ran into this when I went to the gas station. An employee was wearing her mask under her nose. I just stayed away and got out as quickly as possible. I know I could have told her to pull it up, but it’s a young woman working a low-paying job. I had my mask on and I was only in there for five minutes. I wasn’t going to add to her already shitty day. However.
If I were in an office where I didn’t need to be and my boss did this? Yeah, no. That would be all kinds of no. There were stories in the comments about people knowing Covid deniers (some of them coworkers) who then got Covid and they (the commenter) having a hard time having any compassion for the person. It reminded me of a question to Dear Prudence from someone whose relatives, want to say brother and sister-in-law, who were avid Covid deniers, spread misinformation, and wouldn’t social distance or wear masks. The LW (letter writer) was pissed because her brother had set up a GoFundMe when he, his wife, and all their children got Covid. He wanted LW to donate and send it around. She was furious and unloaded some righteous anger in her letter to Danny. LW said not only did she not want to give her brother money or send around his request, she had no compassion for him for getting Covid. I don’t even remember her question–probably something about should she do it, anyway? That doesn’t matter because it’s the response I want to focus on.
Danny, rightly so, took the LW to task for being vindictive in her response. He said that it wasn’t the fault of the population that the government has fucked this up so badly and people were confused. This was a few months ago, I hasten to clarify, when information about what to do wasn’t quite as obvious as it is now. Danny also said that wanting someone to pay with their life was cruel no matter the person’s behavior beforehand. He said no one deserved to get Covid for their beliefs/behaviors.