Underneath my yellow skin

Tag Archives: neurodivergent

Neurodiversity and me, part two

In yesterday’s post, I talked more about the family dysfunction that papered over my neurospiciness for far too long. I mentioned how my mother struggled with my brother because he has the classic male symptoms of autism.

By the way, when I said to him a few months before my medical crisis (in early September of 2021) that something was because he was on the spectrum, and he went quiet. I said it that way because I assumed he knew. He’s a textbook case; he really is.

A few weeks later, he mentioned it to me. He had not known he was on the spectrum so my comment hit him hard. He’s like me in that once he hears of something, he researches it. He hit up the Googles and was shooketh at how accurate it was. he told me that it really helped him make sense out of–well his life.

Side note: I regret I did not tell him earlier. I know it’s not my job to tell him about himself, but I’ve known for decades that he’s on the spectrum. I could have said him so much grief had I told him earlier. Truth to be told, I thought it was so obvious, I did not need to bring it up.

And, yes, I was (and am) his younger sibling. Still. I can’t help feeling gulity because it’s been drummed into my head that I am responsible for the feelings of everyone around me. For example, when my brother got divorced almost two years ago, my mother asked if I was going over to clean and cook for my brother.

She said these words out loud. As if they were normal words. You have to know that if the situation was reversed, she would not have asked my brother the same thing. It was because she perceived me as a woman and of course it’s a woman’s duty to cook and clean for the men around her!

Here’s the funny part. My brother is a much better cook than I am–and he enjoys it. He has two older teenage boys in his house who are perfectly capable of coking and cleaning, too. I finally told her, “I don’t do either of those for myself; why would I do it for him?”

My mother did not appreciate that. At all. She actually snapped at me in a snide voice with a nasty tone that he was so busy and could do with the help especially since the divorce. My ex-SIL did not do much of the cooking or cleaning, anyway, for much of the marriage. And, again, there were two late-teen boys who were bodily able to cook and clean.

But, see, in my mother’s brain, there is only One True Way to woman, and what I was doing ain’t it. What I was doing was NEVER it.

If she weren’t my mother, I would have much more compassion for her. Because it’s very sad to be stuck in her head. First of all, she is very anxious. I would say diagnosable anxious. Like, put her on some meds anxious. With a side helping of germaphobia. No, that’s not a real word, but it describes perfectly what I mean.


Continue Reading

Hidden disabilities and me, part five

In yesterday’s post, I talked more about the medical model of ‘fix the broken thing’. I also ranted about a variety of things as is my wont; now, I’d like to actually talk about the social model of disability. Or not. We’ll see where my brain goes.

The basic premise is that it’s not the person who’s wrong, but the society. Or rather, our society is set up for ‘normal’ people. In many different ways, but in this case, let’s give a ‘for an example’. Let’s talk about time. Most jobs are 9-to-5, if not earlier.

Side note (but a related one for once): I have recently learned of a disorder called Delayed Sleep Phase Syndrome (DSPS) in which people affected can’t consistently go to bed at a ‘normal’ time. 2 hours or more than the recommended/normal/randomly chosen time to go to bed. It’s fascinating because one of the suggestions for adjusting your schedule to a more ‘normal’ one is to push your sleep schedule forward/ahead an hour at a time.

Let’s say you go to bed at 3 a.m. normally. The old advice would be two go to bet at 2 a.m. until you get used to it, then 1 a.m., etc., until you get to the desired time. I have tried that. A few nights of fucking that up and it’s back to the old time again.

The suggestion I mentioned was to go to bed at 3 a.m. for a few nights, then 4 a.m., then continue that until you get to the desired time in the opposite direction. I have not tried that, and it’s so involved. It would take months to do that.

I have a wild third option. What if we, hear me out, allow people to follow their natural biorhythms? Outrageous, I know! Acutally letting people sleep at a time that’s good for them? How dare I? Look. I know that there are reasons for business hours being what they are. Well, no. I don’t, actually. I mean, I know that it’s ‘always been this way’ (yeah, right) and that there is some sense to getting it done first so you can have time afterwards for personal life.

But I just don’t function at eight in the morning. I am at my best at two in the morning, which is not normal at all. After my medical crisis, I did sleep from 10 p.m. to 6 a.m. for a year. That was a magical time, honestly.

It’s not me, though. My sleep schedule started sliding back to what it had been before (4 a.m. to 12 p.m., basically), even though I tried to ffight it. I’m struggling with it again now. I’ve gotten it to 3 a.m. to 11 a.m., but it keeps bumping towards later.

My best thinking time is when the rest of the world is asleep. That’s when I feel the most alive, when my brain is the sharpest, and I am at one with the universe.


Continue Reading

Hidden disabilities and me, part four

Yesterday, I talked about the medical model, family/cultural dysfunction, and other things related. Today, I want to expand more on this, but also talk about the social model. What is the social model? Well, first, let’s talk about the medical model. Grossly simplified, it looks at the ‘problem’ and comes up with a way to fix it. For example, if someone  has a broken leg, then they would put a cast on it as a way to make it better. Obviously, not everything is that cut and dry, but that’s the basic gist of the medical model. Something is wrong, so we have to find a way to fix it.

There are complications, of course. I mentioned in the last post that there are many biases that influence medical people. Fatphobia is a big one. Also, the fact that the patient is assumed to be a medium-sized white man with no discernible features.

Now. Mental health issues are different because they are not as easy to measure (well….ok. Not the point, Hong. Move on), but treatment follows the same path. Find the problem, say depression, then attempt to fix it. Through medicine or therapy, maybe both.

There has been an explosion of diferent kinds of therapy in the last decade or so. Cognitive Behavioral Therapy (CBT) has become the darling of therapies, and my cynical side says that it’s in a large part because it’s the easiest to dispense/do.

Focusing on changing behavior is much easier than changing ideas, thoughts, trauma, etc. I have always disliked CBT because the premise is that there is something wrong with the person’s behavior/thoughts/ideas and those need to change. Basically, it ignores strucutural/systemic issues and focuses on the individual. Something is bothering you? It’s your fault or you’re perceiving it incorrectly. Racism? Sexism? Homophobia? Handwaved away.

It’s commonly known that people who are depressed are more broadly perceive the world realistically than people who are more optimistic. Therefore, someone telling a depressed person that it’s all in their head will gain no purchase beacuse the depressed person is more likely than not to be correct.

America is a hellscape right now for social justice rights. That’s my perception, and it depresses the hell out of me. Am I wrong? Nope. Therapy can help me find ways to cope with it, but it cannot change the reality that America is going in the wrong direction.

In additon, I had a shitty childhood. I have a very dysfunctional family. You can’t magic that away or pretend it’s not true. I cannot respect any therapist who won’t acknowledge this.


Continue Reading

Hidden disabilities and me, part three

I want to talk more about being a weirdo and slowly finding out that it’s not me. In the last post, I mentioned  that I had a rough childhood/teenage years/early twenties because I did not realize that it wasn’t just me. To clarify: I am weird. I am odd. I don’t fit in the mainstream for many reasons. I don’t like most of the popular culture popular things, which I have made my peace with at this late date in my life. But there were things that tripped me up (literally) that I figured was my own fault.

Like being clumsy.

It’s something I’ve dealt with all my life. I have run into things, fallen over things, tripped on things, etc., ever since I can remember. These are incidents that have happened to me: When I was two, I jumped off the bed (following my brother, apparently) and hit my head against the headboard. I had to go to the hospital to get stitches; I got my fingers slammed in the car door by my mother. Miraculously, no lasting damage; I broke the garage door window by hitting it to kill a mosquito (I maintain that this wasn’t completely my fault because the glass should not have broken that easily). Those were the big ones, but there have been countless incidents of me burning myself on the oven, running into the wall, stubbing my toe, etc. Oh! There’s one more incident–I dropped a weight on my big toe (a free weight). That’s another. Probably a 10 or 12-pounder.

Since I started learning Taiji, I have fallen off a ladder twice. Another thing. Driving, I have had several mini-issues with things like knocking the side mirror as I’m pulling into my garage, scraping the door against a mailbox, etc.

I have had bruises on almost every bit of my body. In fact, I would say that it’s a rare day when I don’t have a bruise. Oh, and I am keloid so I scar/bruise more visibly than other people. Currently, on my arms, I have five or so scratches/burns whatever that atre very visible.

I have called myself clumsy since I was little. As I wrote before, it doesn’t help that I am dreamy and don’t really pay attention to my surroundings because I am always in my thoughts. That’s why I think that it’s mostly me–because I am not in the present very often. Even when I’m practicing Taiji, my mind tends to wander a great deal.

The more I learn about autism, ADHD, and now dyspraxia, the more I think that maybe it’s not just all in my head. Or even if it’s in my head, that there’s a physical reason for so many things that I thought were just flaws. One of the problems with sexism (trust me, this is related) is that most of the known symptoms for these are more commonly found in men. Some of them are across the board, of course, but the ones that are not emphasized are more often found in non-men.

That’s not surprising. Eevrything medical is related to men. Men are the subjects of all the studies, even for pregnancy, and the recommended treatments are based on the average white dude. This is changing, but not fast enough. As an Asian non-male person who is twice as effective by mids as a wihte dude, it’s frustrating. Apparently, when i was in my coma, my mom kept telling my brother to bring up the fact that I was sensitive to medicines when I wouldn’t wake up and the docs were calibrating how much sedation to give me.


Continue Reading

My particular brand of neurospicy

For the first twenty years of my life, I felt like I was an alien without the manual for being human. Part of that  was because I was the kid of two immigrants who did not want to be in America. Or rather, one of them did not  want to be, and he was the king of the castle. We had very little interaction with American culture as my parents spoke Taiwanese at hom (to each other, but not to my brother and me), had only Taiwnaese friends, and did not watch any American TV. We did not go to the movies or listen to the radios. My father demanded Taiwanese food, and my brother and I wanted American food. We preferred pizza, mac and cheese, and the like.

Side note: My favorite part about church was that we went to a fast food restaurant afterwards. Usually McDonald’s or Burger King, but sometimes arby’s or Wendy’s. Then, for one glorious meal, I could eat a delicious Big Mac or a chicken parm (at BK) or a roast beef sandwich without being shamed for it.

Side note II: For decades, I thought my mother liked cole slaw and always gave her mine when we went to Kentucky Fried Chicken. Turns out she did not, but she felt she had to eat it because she did not want it to go to waste.

I did not realize that I was also just…diffreent. I didn’t think of things in the way other people did, but I didn’t know why or how to correct it. For example, other girls liked to play with dolls; I never did. I like stuffed animals because you could cuddle them and they felt squicshy and comforting. I didn’t realize until much later that this was because of my sensory issues, but I always felt better after hugging a plushie.

I also felt as if other kids were talking to each other in a language I could not undrestand. I remember going through the motions and hoping that no one would notice that I did not know what the hell I was doing. I basically shut up and didn’t say anything that would make me a target.

In addition, my father had a weird idea of what was supposed to be kept ‘secret’. The example I always give is when I was a kid, he and my mother were out playing tennis with some friends. Another woman from church called and asked for my father. I said that he was playing tennis with some friends and thought nothing of it.


Continue Reading

Neurospicy is the new neurodiverse

Neurospicy is the new word for neurodivergent. I’m not sure how I  feel about it, and I say this as someone who is pondering whether or not I am–neurodivergent, I mean. In the last few years, I have heard it being called neurodivergent, neuroatypical, and neurodiverse. Neurospicy is a newer one, and I think I like it in a casual setting, but not for something like an office. Just like I wouldn’t use queer in a more formal setting, but I would with my friends.

I only started thinking about this issue seriously in terms of myself a few years ago. Why? In part because I did not present in the typical way, which I learned was more based on male behavior than female behavior (as are most medical diagnoses, sadly). I learned about a decade ago that the hyperactive thing was a drastic simplification of the matter. There was also a hyperfocus aspect that people overlooked when they talked about the inability to focus. Those two things (not being hyperactive and being able to focus with a laserlike precision) made me dismiss the idea that I had ADHD for a long time.

I kept getting drawn back to it, though. Things like being repeatedly told you’re lazy because you wouldn’t (couldn’t, actually, but it looked like wouldn’t) do simple things like check the mail or recycle empty boxes (the ones my cat, Shadow, doesn’t want). I would castigate myself for being lazy, which didn’t help, of course. I didn’t even learn of the term ‘executive function’ until about five years ago.

I did hear about hyperfocus before then, but I still didn’t think it was me. Until I read more and more about it. How it presents it women, I mean. I no longer identify as a woman, but I definitely grew up being treated as one. Oh, and it’s often talked about as a kid’s thing, when it’s definitely not.

The other complication is that I have trained myself from a young age to overcome some of the symptoms without even knowing it. I have, er, had a phenomonal memory. So I can overcome the shortcomings like being bad with details by brute force. I was also trained to take care of other people’s emotions so I was forced to pay attention to other people to an unnatural degree. I also have an off-the-charts EQ and can read people like books to an extent that makes them uncomfortable.


Continue Reading

I’m such a freak

I’m a freak. I know that. I’ve known it since I was in my twenties. I just didn’t realize to what extent until, well, now. And I’m still realizing it. I wish I had known the extent when I was younger because then maybe i wouldn’t have wasted so many years feeling like there was something wrong with me. And being deeply depressed about it.

One thing I’m still coming to terms with or realizing is…well, it’s more of a question. How much of my weirdness is an actual disability. I’m some flavor of neurodivergent, but I have never been tested because I can mask it well enough for government work. This actually took me until I was in my thirties to fully grasp that people do not think the way I do. Not just in opinions, but in the actual way of thinking.

I have a very high EQ, which is how I can make myself look like a normal person. Something I have difficulties with, though, is very dry humor. Since I use facial and body cues to read someone, it’s hard when they mask that–or make a joke in writing that is very sardonic. My brother does this all the time, which makes it difficult for me. I can usually know when he’s making a joke, though, because I know him well.

Back when I was younger, I was numb all the time. I had to suppress my emotions to the point where I no longer felt them. There was a time when someone could tell me the best news in the world, and I would feel nothing inside. Same with the worst news in the world. “I’m getting married!” Nothing. “My mother died.” Nothing. “I got a promotion at work!” Nothing.

Part of that was because you can’t always tell good news from bad. “I’m pregnant!” is usually good news, but not always. Not if the baby is not wanted or an unpleasant surprise. Or, god forbid, the result of forced sex. “I’m getting divorced!” looks negative on the surface, but for some people, it’s the best thing to happen to them.

Back when I was completely divorced from my emotions, I would have to follow a very elaborate system so I could display the proper emotions. So. Let’s say someone told me they were pregnant. My first step would be to scrutinize their face to see if there were any signs whether they were happy or not about it. If I got the news by text/email, I would pore over the rest of the email/text for clues. Exclamation points? That meant something. Exuberant words? Good. That helped as well. Then I could match their emotions with simulated emotions of my own.

This took less than ten seconds on the average, and I was able to make it seem as if my reactions were natural. With practice, I got it down to two or three seconds. It appeared like an organic reaction, but it wasn’t. With the help of Taiji, I’ve been able to inhabit my body and feel comfortable in it. Dying twice has cemented my love for my body.

I’m still shaky on emotions, but I’m able to feel them more than I ever have. I still go through the process I mentioned above, but it’s at lighnting speed now, rather than several seconds. It’s as if I have a Rolodex (I’m old) of emotions in my head that i rapidly flip through until I find the right one.  So it’s still not organic, but I’m not bothered by it.

It’s interesting. Even knowing that I’m different, a freak, and a weirdo, it’s astounding how far out of the norm I am. And, this is something I have a hard time discussing, that I might actually have disabilities. Believe me. It’s not something my family would have accepted. My father cannot handle the idea of women who actually work outside the home (even though he saw plenty of them when he was the VP of TIER, the Taiwanese Institute for Economic Research) let alone whatever the fuck I am.


Continue Reading

Conflicting health issues

i have suffered from migraines for quite some time. Let me backtrack a minute. I’ve had a low-level headache pretty much all my life. It’s always been there whenever I really think about it. For decades, it’s been something I’ve lived with and just dealt with as need be. I took ibuprofen when it got bad, and that did jack and shit. I will confess something that I rarely talk about. When the migraines hit in the old days, they were fucking awful. Two ibuprofen did nothing to them. My migraine just laughed at that pitiful attempt to block it. Three? Ha! Not a chance. It took six in order for the ibuprofen to have any effect on the migraine. Which, by the way, I didn’t recognize as a migraine at the time because I don’t get auras.

Side note: This is one of the reasons that it’s important to not have a fixed idea as to the symptoms of a health issue. They don’t manifest in the same way for different people.

Side note to the side note: It’s similar to how most medical studies are done on white dudes. Well, that holds true for a lot of things, but the medical part is especially pertinent here. I was in my thirties when I discovered that Asian people needed much less of most medications than do white people. It was around the same time when I also realized that as a woman, my ‘normal’ dose would be much less than a man’s. This had disastrous results when I tried to find a solution to my sleep issues. Hm. Was it in my late twenties? Maybe. That or my early thirties.

I was desperate. I had tried a bunch of things that didn’t work. Hot milk before bed. Hot chamomile tea. Lavender in the bath (how I found out I was allergic to lavender). Ambient music. White noise machine. Which, I will say, did help, but didn’t eliminate the core problem. Same with earplugs and an eye mask, but those didn’t come until later. At some point, I tried melatonin, valerian, St. John’s Wort (more for depression than for sleep, but didn’t work). The valerian actually made me suicidal because it slowed my brain down so much, I couldn’t make a coherent sentence.


Continue Reading