I’ve been experimenting with drinking caffeine again because it’s good for my migraines (but not too much) and it’s might be good for whatever is ailing my left thumb. Heh. I first wrote thump. Left thump. That’s funny. Anyway, It’s been a few months and the results have been mixed. I’ve been mostly migraine symptoms free, so yay! Thumb is slowly and painfully getting better. Not fast enough for my liking and I don’t know if caffeine has anything to do with it. I’ve been stretching and massaging it daily, which is probably the real reason it’s doing better.
It’s fucking my sleep really badly, though. at least, that’s what I think is the problem. I don’t think it’s caffeine in general, but either how much I’m drinking or when I’m drinking it. Or rather, not how much I’m drinking, but how strong I’m making the coffee. Either way, I’m falling asleep anywhere from 10 p.m. to 4 a.m. and getting up…well, there’s no set time any longer. On the one hand, it doesn’t matter because I rarely have to be anywhere in the morning. On the other hand, it’s really fucking with me not to have any kind of schedule.
When I was going to bed at 7-8 a.m. and getting up around 1 p.m., that was a schedule. It wasn’t a great schedule, but it was a schedule, nonetheless.
Ok. Because of said schedule, I’m tired. Done for the day.
My sleep has been shit(tier) lately so I apologize in advance if this is a rambling mess of a post. Sleep, my lifelong nemesis. So much so, I’ve written a novel with Morpheus (of Neil Gaiman fame. Not that he invented Morpheus, of course, but this particular version) as the main antagonist. Goddamn it. I still feel sorrowful when I think of that novel because there’s no way I can publish it. It’s not fanfic as the main character is, well, me. I use all the members of the Endless as I envision them, and, quite frankly, it’s really good.
Anyway, I’d been happy because in the past year or two, my sleep had stabilized. But then in the last few months, it’s gone off the rails again. Why? I don’t know. Is it because of the coffee I’m drinking again? You’d think so, but the troubles started before I took up caffeine once again. It may not be helping, but it’s not the root cause. It’s frustrating because caffeine is beneficial for some things (thumb issue if it’s RA), negative for some things (sleep) and both in others (migraines). So far, I’ve kept the caffeine because the positives have outweighed the negatives, but I may have to quit if it gets worse.
My thumb is better. It’s still sore and tender and hard to bend at times, though. I’ve decided that it’s probably better not to wear a splint most of the time because I don’t use it when I type. The main reason to wear a splint is to keep the digit from moving on its own or from being accidentally knocked into. I feel that constricting the blood flow is not a good thing to do for hours on end so I only put it on when my hand starts actually hurting rather than just being sore and tender to the touch. I can deal with it even though I’m not happy about it, obviously. What’s more worrisome is that my right hand is starting to have…issues. Not the same issues as my left thumb, but still.
Ok. I’m just not feeling it today. Here are Maru, Hana, and Miri.
I gave up coffee. Again. Maybe not for good, but I switched back to green tea for my caffeine. Why? Because my sleep has been terrible since I started drinking it again. Green tea didn’t seem to have that effect and it’s delicious, especially with pomegranate. I haven’t had this bad of sleep in some time and it’s really messing with my head. Yes, my migraines have been kept at bay, but is it worth it? I don’t know. With the absence of the migraines, I would say yes. But, in the middle of a migraine, I would say no. It’s the duel of the conflicting health issues!
On the weapons front, I loaded up today. I did the beginning of the Double Sabre Form, sword drills, the whole Sabre Form, the Karambit Form, and spear drills. Oh, I forgot to do the one row of the Cane Form I know, so I’ll do it tomorrow. I’m still thinking about about a music/form mashup and we’ll see if I have the energy for that. One thing about going to the demo is that it fills me with possibilities–much like a kid with her nose pressed to the window of a candy shop. I want everything I can see and all at one time. My teacher likes to say that there’s a lifetime to learn things so there’s no reason to rush.
She’s right, but that doesn’t stop my brain from whispering that I’m behind and need to catch up. Not that kindly, of course, as my brain is really mean to me most of the time. Actually, I have to check that. It used to be horrid to me. I had a constant tape of negativity that looped in my brain and it just felt normal. I called him (and it was definitely a him) The Dictator and he was a cruel master. He had so many rules and regulations, it was impossible to keep them straight and not mess up.
Side note: Quick background about the Dictator. I grew up being constantly told, mostly by implication, that my feelings were not valid. They constantly got minimized and ignored, and I was not allowed to show any kind of negative emotion. Negative meaning anger, sadness, depression, etc. Only my father was allowed to show anger because he was king of the castle and allowed to do whatever he wanted. The rest of us had to tiptoe around him and catered to his every whim.
I internalized those messages to such an extent that even now I have difficulty showing human emotions in a natural manner. It’s one reason I prefer writing because it’s easier to mimic through written words than through speaking. I’m better at it, but it’s still not something I can do without thinking. In the past, I’ve been able to mimic the emotions because I’m observant and I used to do some acting in my youth.
I want to be clear. It wasn’t that I didn’t feel the emotion on some level. If a friend told me they, say, got a great new job, then I felt happy for them deep down inside. The problem was that I had wrapped my emotions in multiple layers of cotton that I could no longer feel them. Not only that, I couldn’t even access them.
I had a flat affect at the time because I was in a deep depression and I felt as if I could never get out of it. Now, I’m still not as emotive as ‘normal’ people, but I can more easily pass. And I have access to my emotions, albeit muted versions.
My sleep has gone to shit again. This is not surprising, though it is disheartening. It happened once early in the lockdown and I managed to get it mostly under control–going to bed by 2 a.m. at the latest. In the past week or so, however, my body has just said to fuck with all that. I just had the revelation that it might be because I’m drinking caffeine every day again, although that has been longer than the sleep bullshit, I think. Back when I used to drink caffeine on the regular, it didn’t affect my sleep at all. But I gave it up for two years so maybe I’m a newb again when it comes to caffeine. Or it could just be my body being stupid. Bodies are stupid sometimes.
Bedtime has been creeping back again bit by bit. I hit the peak of 6 a.m. two nights again and decided I needed to rein it in. The problem is that I fall asleep/nap around nine or ten at night for an hour or so and then I can’t properly fall asleep for hours. Last night, I went to bet at 5:30 a.m. Sigh. Oh, and I think I have some kind of bug because I’m sleeping more than seven hours a pop. I would like to get it back on track, but a small part of mind says, “Who the fuck cares in this year of our lord, the pandemic?” It doesn’t matter, really, when I go to sleep, but it’s a point of honor now to see if I can actually sleep like a normal person. If I can move my bedtime to 1 a.m. and keep it there, I’d be satisfied.
Let’s talk about the staff/spear. I write it that way every time because it’s a staff, but I’m doing spear drills. It’s made of waxwood and it’s smooth as butter in my hands. It feels like supple plastic (in a good way) as it slides effortlessly in my hands without the fear of getting splinters. I love it like I’ve loved no other weapon save the sword and I want to learn ALL THE THINGS.
This segues into the title of my post, however. D is for disability. I don’t use the word because I don’t feel like I have the right but also because I don’t want to put that label on myself for the usual litany of reasons. Internalized ableism; feared ableism; thinking of myself as lazy rather than disabled; and more. In addition, it’s hard to think of myself as disabled because as I’ve said before, each individual thing is not huge in and of itself.
It’s also hard because I feel like a lazy bitch all the time. Part of that is depression, but part is because my body tires out so quickly. Then I think it’s because I’m fat and lazy and not in good shape, not because of my various issues.
I can’t. Sorry. I’m just not in the mood. Some days, it’s just too much effort. Here’s Apocalyptica doing O Holy Night.
I have a problem doing what I need to be doing. In this case, mailing in my absentee ballot. I’m registered to vote and requested my ballot in the beginning of September. I didn’t get my ballot and didn’t get my ballot so I checked the SoS website. It said it was sent September 18th. What??? I only checked my mail once a week (Sunday when I went to put out the trash) and there it was–two weeks after they said they sent it. Which meant it took at least five or six days to get to me–which shouldn’t be the case.
Then, I set it on my counter and didn’t do anything about it for two weeks because that’s how I roll. We had a bit of snow yesterday and it was predicted we’d get 5 – 8 inches today (now downgraded to 4 – 6) and it was getting uncomfortably close to the election for my taste. So, I went to mail it (I don’t trust my mailbox for good reason) and it felt so damn good to be driving with the windows down in 30 degree weather. I felt alive and refreshed; I had forgotten how much I loved doing that.
By the way, voting in my small city is so easy. I just Google candidates for about fifteen minutes and bob’s your uncle. Even for ‘non-partisan’ (yes, in quotes) positions, it’s fairly easy to tell where they stand on issues. If the first thing they mention is taxes, they’re not the candidate for me. If there’s no mention of social justice (especially with the current events being what they are), hard no. If there’s no challenger such as with judges, I don’t vote. I’m not feeling great about this year’s election for many reasons, but I knew I had to vote.
Being in the car with the window down, the brisk wind reddening my cheek, that felt good. Now, I’m on snow watch and it’s coming down hard. I can feel my soul expanding as I watch it fall. Oh, this is another reason I am not good with people. I love winter. I love snow and the cold. When the weather drops below forty, I feel more alive. Other people get SAD in the winter; I get it in the summer. Or rather, I get irrationally angry when the temperature rises about seventy. Put me in zero degrees with my weighted ‘cool’ blanket and a mug of dairy-free hot chocolate with my cat on my lap? Hell to the motherfucking yes!
It’s been a rough week. Nothing big, but just little things over and over. A few nights ago, I dropped a bowl and shattered it in the wee hours of the morning. Totally my fault. I was trying to carry too many things as I normally do because I’d rather make one trip than two.
Back it up a bit. I’ve been feeling sick for nearly a week. Not ‘rona virus sick, but my usual bad cold/allergies/sinus/change of seasons sick. It’s worse than usual, though, because I’ve been getting the chills. That’s when I know I’m really sick. My sleep is for shit which is par the course when I’m sick as well. I mean, it’s normal for me in general to have disordered sleep, but it’s been slightly better since I started taiji. Still. I get six to seven hours of sleep a night, which is better than the four I used to get, but still not enough. I’m constantly exhausted, but I’ve learned to cope with it. Sort of. Basically, I’m resigned to my fate.
One of the symptoms of me getting sick is when I sleep for eight hours or more. It’s one of the few things I actually like about being sick. Ok, the only thing. It doesn’t make me feel more rested when I’m awake, though. The benefit is strictly that it knocks me out for a few hours more.
So, when I get sick, it can last anywhere from weeks to months. I haven’t been really sick since the pandemic started (one of the few benefits of never leaving the house), and I was naively hoping that I would be able to skip the colds this year. Nope.
Anyway, so that’s the background for the rest of what I’m going to write about. I dropped that bowl in the wee hours of the night a few nights ago right before I was going to bed. I was not happy about it, obviously, and I had to lock up Shadow in the guest room so he wouldn’t step on the ceramic pieces. I used treats to lure him there while I took care of the shattered pieces. When I went back to let him out, I fully expected him to yell at me for locking him up. Instead, he was cozied up on the bed and snoozing. When I opened the door, he opened one eye to blearily stare at me, but otherwise stayed put.
I’ve been having a rough time lately with, well, lots of things. The low grade depression I’ve been experiencing for over a year–it might be two at this point–is more noticeable and yet….It’s hard to explain. I’m not outwardly depressed, but my body has been wrecked for a while now. The last week, I’ve been sleeping seven to nine hours a night except for two nights, and that’s a lot of sleep for me if I’m not sick. Am I? I don’t know. My nose is a bit prickly and my throat is a bit gummy, but nothing more than that. Oh, and I’m exhausted, but that’s par the course for me.
In addition, we’re renovating the house, which means I have to clean the bedrooms. I’m a slob. This is not an easy task. Well, one of the three rooms is clean, so that one is fine. My bedroom is a disaster area, and my computer room is worse. I’ve been working on my bedroom employing different strategies. The first was to do something every time I got up to do something else. Throw the clothes on the floor down the chute. Pick up papers from the floor. Or, in the case of my computer room, gather up all the stuffed animals. Then, I started to be more specific and take on larger chunks. Fill up this storage box with books from the bookshelf in my room. It’s a small bookshelf, but it’s already filled two medium-ish size storage containers. Today, I’m going to focus on cleaning out the top row and making sure everything is off the floor. Tomorrow, I’m going to tackled my desk. Which means getting more storage containers. Which means going to Target. I also need to get masks because there is a lot of dust I’m stirring around. A LOT.
I’ve heard of the Pomodoro method which is setting a timer for fifteen minutes and then doing whatever for that amount of time. The theory being that once you start, you’ll keep going. Or, if you don’t, at least you got fifteen minutes done. It’s a good method, but it still felt overwhelming enough that I chose to do it my own way. The bottom line is that if I put any kind of stricture on it, I wouldn’t have done anything. Now, I’m nearly done with my bedroom, and it’s more work than I’ve done on that room in over a year. The trouble is that I can only do so much in a given day, and it’s not because I’m lazy. It’s because of all my health issues. Which I’m still having a difficult time grasping as ok. Or rather, I’m having a hard time not thinking it’s all in my mind.
My family is very pro-work yourself into a grave. Both my parents work way more than they should, and when my father was forced to retire, he withered until he started an association into which he pours all his time, energy, and heart. My mom will never retire and if she does, she’ll volunteer most of the time, anyway. My brother works fifty to sixty hours a week and seems to have all his spare time crammed with interesting activities. Me, on the other hand, spends most of my time plunked on my couch. The work I’ve been doing on my rooms has been difficult, and it doesn’t help that I’m chastising myself for not doing more.
In part one, I talked about my frustrations with things that do not change over time. In this post, I want to talk about the things that have changed without notice from me. I’ve mentioned some of them in the past such as my sleep. To summarize briefly, when I was in college, I rarely slept more than three hours a night. Then, when I went home on breaks, I slept for fifteen hours the first night. Partly because it was my sleep deprivation catching up to me and partly I would get sick, but fight it off until I got home. In my late twenties, I slept maybe four hours a night. I will say I have thyroid issues, but at that point of my life, I had hypothyroidism and not hyper, so insomnia should not have been a problem. If anything, it should have been the opposite. I got my thyroid destroyed when I was fourteen (radiation), so any insomnia before hand could be attributed to hyperthyroidism (well, at least partly), but afterwards, it should have course-corrected.
I also learned yesterday that having vivid dreams is a symptom of not getting deep REM sleep. It was like a light bulb went off in my head. I used to have very graphic and disturbing dreams all the time when I was sleeping four hours a night. I woke up after two hours, usually in a cold sweat because of a weird and intense dream, and then I’d drift off into another uneasy, unsettling dream before waking up again. I knew I wasn’t getting REM sleep, so it was weirdly validating to read that I wasn’t just imaging things.
In the time I’ve been studying taiji–over ten years–I’ve slowly started sleeping more and more. I’m up to six hours on a good night, and I rarely remember my dreams any longer. If I do, they’re anxiety dreams. While not great, they’re much better than the murder dreams I used to have. Six hours is a huge leap for me, but it’s hard not to get fixated on the fact that I’m not getting the requisite eight hours unless I’m sick as I am now. Currently, I’m going from five hours in one night to nine hours the next. That’s how I know I’m sick. It’s actually one thing I like about being sick–I actually get a long chunk of sleep without disturbance. Other than that, though, it pretty much sucks.
I say this as if it’s news, but it’s not really. My sleep has been shit all my life for varying reasons. I had gotten into a semi-regular sleeping habit recently of going to bed by 2 am and getting up around 8:30*. Then, I got sick again as is my wont and my sleep schedule got all fucked up again. The sleep time started getting pushed back further and further until I found myself going to bed at 5 a.m. Then, two days ago, I could not stay up past 11:30 p.m. I crashed, but kept waking up every few hours. I finally got up at 6:30 a.m. or so, and I felt shittier than if I had gone to bed at my regular time.
If I could have one wish come true, it would be that I could get a solid eight hours of sleep a night. That I could sleep without tossing and turning for a half hour first. That I wouldn’t wake up in the middle of the night, my heart pounding uncomfortably fast. That I wouldn’t have nightmares, or more recently, anxiety dreams. That Shadow wouldn’t be in my face howling when I woke up in the morning/afternoon. That I would feel actually rested when I woke up. That my immediate response wouldn’t be, “God, I wish I could sleep forever.”
Some of that has to do with depression, of course. I don’t want to be alive, and that makes it harder to get up and go about my day. There was a program on MPR (or perhaps NPR) about suicide and how to talk to someone with suicidal ideation. The doctor said you had to first find out why the person was feeling suicidal. She mentioned there was a difference between someone who coped with the thoughts on a daily basis and someone who might have those feelings in response to a bad situation. She said in the former, it doesn’t help to tell them it’s going to be ok or to look at the bright side. She said it made them feel more isolated and as if nobody understood them. I wanted to shout an ‘amen’ from the rafters because fuck that bullshit.
I’m tired. My sleep is fucked, which means at least I’m not sick. My sinuses are still all over the map, and I’m squarely blaming that on the weather. It’s been 50 to 89 and everywhere in between. I’m loving the former, but not the latter, and my body really doesn’t like the rapid changes. I’ve also become even more intolerant of heat, and my love of the cold is gradually diminishing as well. I used to be able to keep the car windows open until it was well in the sub-zero temps. Now, I close it when it’s zero.
I have said that the problem with getting old isn’t that I can’t do what I used to (though that is starting to be a problem), but that it takes much longer for me to recover. I used to be able to get by on four hours of sleep a night (barely); I could go out until the wee hours of the night and sleep it off the next day. Now, I could go out all night, but it would take a few days to recover.
I also have to admit that my depression is back and not going away any time soon. It’s low key, and it’s not paralyzing the way it has been in the past, but it definitely permeates my mood. There’s an ever-present feeling of ‘why bother’, which seeps into everything. It’s frustrating as hell, and I know the only thing I can do about it is to go to therapy.
I do Not want to go to therapy. Not because I think it’s worthless; I don’t. I am a big proponent of therapy, and I have been in it many times in my life. I have learned a lot from therapy, and I know I could learn more. However, the thought of finding a new therapist makes me want to curl up in a ball and never get up.