Underneath my yellow skin

Tag Archives: diasgonses

When labels are actually useful

I’ve made it pretty well known that I do not like labels for the most part. I find them restrictive, reductive, and sometimes, misleading. However, there is one time when I find labels useful. That’s when it comes to health, physical and mental. Let me explain.

When I was in my twenties, I had what I thought was really bad carpal tunnel syndrome in my right wrist. It was logical to think that was what it was because I typed a lot (and I mean excessively), and I didn’t always pracice good typing posture (and by that, I mean I never use good typing posture. I let my wrists collapse more often than I should. I did have a wrist rest, but I relied on it too much).

I had a soft cast for months, but it did not help. Nothing else helped, etiher. None of the exercises that the doctors recommended did one bit of good. After my GP could not firnd what was wrong with me, she sent me to a specialist. I don’t remember what kind of specialist, but I do remember what happened.  He listened to my tale of woe without saying anything. Without a word, he grabbed my thumb and yanked it backwards. I jumped about ten feet into the air.

“You don’t have carpal tunnel,” he announced as he wrote something down. “You have ______.” I don’t remember the name of it beacuse it was long, and I had never heard of it before. I don’t remember what he did for it, either, but whatever it was did the trick. I no longer had pain in my wrist, and I still don’t to this day.

Another time was when whichever doctor/therapist told me I had depression. or did I realize it on my own? Either way, being able to have a name for what I was feeling was such a relief. It wasn’t just all in my head! I mean, it was, but it was an actual thing–not me just making shit up.

Same with a friend gently suggesting that maybe I had autism. Suddenly, so many things made sense. Like me being too sensitive, me having sensory issues, me not being able to look people in the eyes. For me, putting a name to a bunch of disparate issues and being able to realize they were actually A Thing and, again, not just something I made up in my head was invaluable.

K and I had an argument about mental health. Not about the fact that it matters or the fact that we both have issues with our own mental health. It was about how far should we as a society go when it comes to mental health issues. She was uncomfortable with how much medication was happening these days.

She said that when we were kids, we just dealt with our issues because we had to. I pointed out in a less-than-calm manner that some of us didn’t deal with it well–and, indeed, that somepeople did not deal with it at all (meaning, we have lost so many people to mental health issues). I also said that if I had known more about my issues when I was a kid and how to deal with them, I would be in a bitter place now.

We got heated. Voices were raised. It’s the closest we’ve gotten to a fight in our thirty years of friendship. Once we calmed down, we found the common ground as we always do.

Her concern was that people with mental health issues still had to get through each day and go about their lives. If they focused too much on the mental health issues themselves, they might get stuck. I saw her point. There’s a thin line between focusing on your issues in order to work on them and obsessing over them.

On the other hand, if you don’t know what the problem is, you can’t deal with it. I lost decades because I didn’t know I was neurodivergent. I mean, I had a hunch, but all the outside signs ponited to it not being true. Because I was heavily emotionally punished if I dared think my own feelings and emotions mattered, and I was castigated for being too sensitive, I don’t act autistic–whatever that means.

In addition, the stereotypical view of an autistic person is based on male traits, and I never thought that there might be any other portrayal of autism. Once I was told to look traits of autistic women and other nonmale people, things started falling into place.

Just as I changed my bother’s life by casually mentioning his autism (assuming that he already knew about it), a friend of mine did the same for me. My brother immediately accpted what I said to him, looked it up, and told me a few months later that it made total sense. He has the classic (and stereotypical) traits of autism–and I’ve known it for several decades.

Me, on the other hand, I have none of the stereotypical traits–at least on the surface. I am told I’m too empathic, if anything; too sensitive; too emotional; and just too much in general.

All of that is a cover and learned behavior, though. Well, not the too sensitive thing. That’s just me, but that’s actually a symptom of autism–hypersensitivity, I mean. I just read that 90% of children with autism experience sensory hypersensitivity. Most of the research on autism has been done on kids, which is unfortunate. And on men. But that’s not unusual in, well, anything.

Once my friend brought up the possibility that I might be autistic, so many things made sense. So. Many. Damn. Things. And once things slid into place, I became so goddamn angry at society for not giving me a fucking clue that I might be autistic. The problem is that I’ve been masking so hard and for so long, it’s nearly impossible for me to unmask. It’s one reason I prefer being alone. That’s the only time I can just be me.

Well, one of the only times. When I’m with my closest friends, I can let down the mask somewhat. But that’s it. Otherwise, it’s on 100% of the time. And part of that is, apparently, people tell me shit about their lives that I would prefer not to know. I have one of those faces that say, “Tell me everything about you, starting with when you were five years old.”

Even when I tried to cut people off, it didn’t seem to matter. Now, I just roll with it since I don’t go out much any more.

More tomorrow.