Underneath my yellow skin

Tag Archives: early-onset dementia

Dementia is terrible, part four

I’m talking about dementia wrapped in family dysfunction. In the last post, I ended by mentioning that dementia is seen as a moral failing in Taiwan, which has added to the stress of my father’s situation. The problem is that my mother has absorbed that message to some extent. Plus, she’s still in denial that it’s a progressive medical issue that only goes one way. She still thinks she can find a way to reverse it, which has lead to some not-so-great actions on her part towards my father. Like pushing him to do more exercise than he wants to do, for example.

Look. My father is turning 85 in less than 2 months. He has dementia and is in a rapid decline. Let the man do what he wants to do at this point! If that means lying in bed and sleeping all day long, so be it. My mother has said that she doesn’t know what she’ll do when he dies. She has cried that she is not ready for him to die. Which, I get. She’s lived with him for over a half-century. Her life IS him. But, and I cannot express this strongly enough, she is not doing HIM any favors by denying reality.

This is something I’ve thought of several times over the decades. How abuse creates more abuse. I know people don’t like to talk about it, but poeple who are constantly abused adapt in ways that may be considered abusive in response. Not just to the person who is abusing them, but to other people around them (such as their children). I know that some of the coping skills I learned from growing up with my parents absolutely made me abusive in return. It madeĀ  me a terrible partner in my teens and twenties, and I am still undoing the damage decades later.

In this case, my mother has–oh, by the way. This is going to be more about my mother’s dysfunctional ways than dementia in general, but I’ll still probably talk about the latter–adapted to the aubse she suffered in a very maladaptive way. It’s in part because she was raised in a very dysfunctional family (abuse is generational) in which she felt like she was not loved or wanted. Her mother should not have been a mother, either, which seems to be something else handed down in the family.

A story my mother told me when I was in my twenties has haunted me since. When she was a kid (I don’t know what age, but I’m thinking 10 or 11), the wife of her pastor took a real shine to her. I’m guessing the pastor and his wife did not have kids of their own. The wife wanted to adopt my mother, and my mother actually considered it. In the end, she decided she couldn’t do it because it just wasn’t done.


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Dementia is terrible, part three

I’m back to talk more about dementia. At the end of the last post, I veered into talking about how my mother nags and nags until she gets what she wants. She’s been that way all her life, and she taught all of us, including my father, to give in more often than not. Maybe not my father. They had so many shouting matches over seemingly everything, and the environment flipped back and forth between angry yelling and stony silence.

My parents should never have married. I know that sounds harsh, but I honestly think that they would have each had a better life if they never married. No, wait. That’s not true. That’s assuming that they would have gone in different directions and grown as people. My parents are in their eighties and have been married for over half a century. They met in Tennessee where both were getting their graduate degrees (at different schools). My mother had been engaged to someone in Taiwan because her mother wouldn’t let her date unless she was engaged. Which is bonkers to me, but that’s Taiwan in the early sixties, apparently. At least my grandmother’s mentality, at any rate.

She was a piece of work–I’ll tell you that much. I met her maybe five times in my life, and she left a terrible impression on me. Stern, domineering, woman/girl-hating, selfish, and just an unpleasant person in general. My mother had a very rocky relationship with her (because they were very similar), and she was honest with me that one reason she wanted a daughter so desperately was so she could have a better relationship with her daughter than she had with her mother.

Which, by the way, is not a good reason to have a daughter. Or a child in general. My mother has told me that she wanted to be a mother since she was a little girl. She says it’s the most important thing in her life, but she doens’t act as if it is. She wasa dutiful mother when my brother and I were kids, She cooked, cleaned, took care of us, etc. She was almost a single mother in the way she had no help from my father.

My father definitely would have married another doormat to wipe his feet upon if he hadn’t married my mother. The cold hard truth is that he needed someone to take care of him because he wasn’t going to do it himself. When he was president of his company, he had a secretary who would print his emails out, put them on his desk for him to read, and then type up his handwritten response into an email.


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Dementia is terrible, part two

I was talking about my father’s dementia yesterday. In my own meandering way, I was grieving for…what exactly, I’m not sure. Not my relationship with my father because that’s always been strained. That’s putting it politely.

I’ll be blunt. We don’t have a relationship; we never have. My father spent most of my childhood not in the house. I am not going to get into all that, but he and my mother had a very fraught marriage from the start. He cheated on her constantly, and he never bother keeping it a secret. I knew about it once I hit my teens–maybe even before that–because my mother made me her emotional support person when I was eleven.

My father claimed to be working until midnight every day. Yeah, right. ‘Working’. Is that what the kids are calling it these days? He was fucking around–and he never found out. It was an open secret at our church that he always had a piece on the side–from the church.

My father never went to any of my activities. I was in dance, orchestra, softball, cello, and theater at various times in my life. I can count on one hand the number of times he showed up to one of my activities, and that was when my mother made him go.

I didn’t mind, honestly. He was such a negative presence in my life–holy shit. I just thought of something. My ex-SIL was someone who sucked the joy out of the room. She was so unhappy all the time, and she made it her life’s mission to make everyone aroundher miserable as well. I don’t think it was a conscious decision on her part, but she was just so unrelentingly negative. And I’m saying that as someone who is fairly negative myself.

My father is the same. He doesn’t find any joy in anything. There are things that he likes doing, but he rarely smiles unbidden. He doesn’t like any food. Well, he likes Taiwanese food, and very few specific American dishes. The cod dinner from Culver’s and the burger from Smashburger were two of them. His favorite, though, was the brisket my brother made the last time they came. This was Thanksgiving after my medical crisis. Keep in mind that my father never praises anything. After he ate the brisket, he said it was the best thing he had ever eaten. Unprompted.


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